To improve public health, the Indiana State Department of Health (ISDH) collects data on birth defects through the Indiana Birth Defects and Problems Registry (IBDPR).
The IBDPR collects data on congenital anomalies to:
- Monitor the frequency of birth defects in Indiana
- Detect trends/clusters
- Develop educational/prevention programs
- Establish referral systems
If you see young patients, you are required by law to report to the IBDPR all children up to 3 years of age who have at least one birth defect. Also, you must report children up to 5 years of age with autism and fetal alcohol syndrome.
The Web-based reporting system called the Health Data Center Gateway collects IBDPR data, but you must create an account within the system. Here’s how:
- Obtain a security code by calling Ruwanthi Silva at (317) 233-7571.
- Access the Gateway here.
- Click “Create New Account.”
- Enter all required fields.
- If you would like to be notified of your successful registration within the Gateway, click “Send me a confirmation email.”
- Click “Create Account” when finished.
After registering, the next time you log into the Gateway, a “Physician Reporting” link will appear at the top of your screen. This link will be inactive until the ISDH verifies both the user and organization registering for the account. If your account has not been verified within 24 business hours, contact the ISDH by clicking the “Contact Us” link in the upper right corner of the screen.
Changes to your account (e.g., updating demographic information or your affiliated organization) can be made within the Gateway under the “My Profile” link.
The IBDPR is a public health authority as defined in the HIPAA Privacy Rule (45 CFR 164.501) and is authorized to collect protected health information by law.
Find a complete list of reportable conditions, including corresponding ICD-9-CM codes at in.gov.