If you see young patients, make sure you are registered to use the Indiana Birth Defects and Problems Registry (IBDPR).
By law, you are required to report all children 3 years old and younger with at least one birth defect to the IBDPR. Also, you must report children up to 5 years old with autism and fetal alcohol syndrome.
The IBDPR collects data on reportable congenital anomalies to:
- Monitor the frequency of birth defects in Indiana
- Detect trends and clusters
- Develop education and prevention programs
- Establish referral systems
Your information about conditions, such as autism and fetal alcohol syndrome, is necessary to validate the IBDPR prevalence data. These conditions are not usually diagnosed at birth and have been severely underreported to date, according to the Indiana State Department of Health (ISDH).
The Web-based reporting system called the Health Data Center Gateway collects the IBDPR data, but you must create an account within the system. Here’s how:
- Obtain a security code by calling Ruwanthi Silva at (317) 233-7571.
- Access the Gateway here.
- Click “Create New Account.”
- Enter all required fields.
- If you would like to be notified of your successful registration within the Gateway, click “Send me a confirmation email.”
- Click “Create Account” when finished.
After registering, the next time you log into the Gateway, a “Physician Reporting” link will appear at the top of your screen. This link will be inactive until the ISDH verifies both the user and organization who registered for the account. If your account has not been verified within 24 business hours, contact the ISDH by clicking the “Contact Us” link in the upper right corner of the screen.
Changes to your account (e.g., updating demographic information or your affiliated organization) can be made within the Gateway under the “My Profile” link.
The IBDPR is a public health authority as defined in the HIPAA Privacy Rule (45 CFR 164.501) and is authorized to collect protected health information by law.
Find a complete list of reportable conditions, including corresponding ICD-9-CM codes, on in.gov.